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中华眼科医学杂志(电子版) ›› 2021, Vol. 11 ›› Issue (02) : 88 -93. doi: 10.3877/cma.j.issn.2095-2007.2021.02.005

论著

黄斑疾病患者关注手术相关问题及其社会心理影响因素的临床研究
郁艳萍1, 王敬2, 梁曦达3, 王曾仪4, 刘武1,()   
  1. 1. 100730 首都医科大学附属北京同仁医院 北京同仁眼科中心 眼科学与视觉科学北京重点实验室
    2. 321300 金华,杭州医学院附属永康市第一人民医院眼科
    3. 510260 广州医科大学附属第二医院眼科
    4. 100730 首都医科大学附属北京同仁医院2019级博士研究生
  • 收稿日期:2021-03-09 出版日期:2021-04-28
  • 通信作者: 刘武
  • 基金资助:
    国家重点研发计划(2017YFA0104103)

Patients′ concern on macular surgery and its socio-psychological associated factors

Yanping Yu1, Jing Wang2, Xida Liang3, Zengyi Wang4, Wu Liu1,()   

  1. 1. Beijing Tongren Eye Center, Beijing Tongren Hospital, Capital Medical University, Beijing Ophthalmology and Visual Sciences Key Laboratory, Beijing 100730, China
    2. Department of Ophthalmology, the First People′s Hospital of Yongkang, Jinhua 321300, China
    3. Department of Ophthalmology, the Second Affiliated Hospital of Guangzhou Medical University, Guangzhou 510260, China
    4. Doctor′s degree 2019, Beijing Tongren Hospital, Capital Medical University, Beijing 100730, China
  • Received:2021-03-09 Published:2021-04-28
  • Corresponding author: Wu Liu
引用本文:

郁艳萍, 王敬, 梁曦达, 王曾仪, 刘武. 黄斑疾病患者关注手术相关问题及其社会心理影响因素的临床研究[J]. 中华眼科医学杂志(电子版), 2021, 11(02): 88-93.

Yanping Yu, Jing Wang, Xida Liang, Zengyi Wang, Wu Liu. Patients′ concern on macular surgery and its socio-psychological associated factors[J]. Chinese Journal of Ophthalmologic Medicine(Electronic Edition), 2021, 11(02): 88-93.

目的

调查黄斑裂孔和黄斑前膜患者关注的手术治疗相关问题,并探索其社会心理影响因素。

方法

开放式问卷调查。纳入2018年11月至2019年4月就诊于首都医科大学附属北京同仁医院眼科中心患有黄斑裂孔或黄斑前膜须行手术治疗的患者155例进行研究。其中,成人151例,男性35例,女性116例,年龄21~84岁,平均年龄(61.3±1.2)岁。请所有研究对象在问卷中填写个人基本信息后,写下其最为关心的有关于自身手术治疗的10个问题。将所有问题按内容分为疾病性质相关、手术操作相关、术前事项相关及术后事项相关等四类问题,必要时细分亚类。患者所提问题个数以中位数和四分位数表示。不同社会心理因素导致的问题个数的比较采用秩和检验,问题数目的比较采用卡方检验。

结果

问卷应答率为99.35%(154/155例),总计提出问题1207个。所有成年参与者所提问题1177个,疾病性质相关、术前事项相关、手术操作相关及术后事项相关四类问题,分别为8.8%(103/1177)、3.6%(42/1177)、13.8%(163/1177)及73.8%(869/1177)。患者最为关心的问题为术后事项相关问题,例如手术之后日常活动有何注意事项;关心最少的问题为术前事项相关问题,例如需要为手术作何准备。城镇患者更关心术后视力的恢复程度,农村患者则更关心手术治疗的相关费用,二者差异具有统计学意义(χ2=11.544,P<0.05)。女性患者与男性患者相比,更加关心术后能否正常从事家务劳动及看顾孩童等,两者差异具有统计学意义(χ2=12.761,P<0.05)。

结论

黄斑疾病患者关心的手术治疗相关问题因社会经济地位、社会分工等社会心理因素而有所不同。术者应当充分理解此种不同及其原因,进而给予患者针对性和个性化的宣教和答疑解惑,以全面提高手术效果的满意度。

Objective

To investigate what patients with macular hole or epiretinal membrane concern on their surgical management and the correlated social and psychological factors.

Methods

Open questionnaire survey. From November 2018 to April 2019, a consecutive sample of 155 patients with macular hole or epiretinal membrane consulted in Beijing Tongren Eye Center, Capital Medical University and needed surgery were enrolled. Among of them, there were 151 adult, 35 male and 116 female, with average age of (61.3±1.2) years-old (from 21 to 84). All participants were invited to write down 10 questions cared most about their surgical management after filling in their personal information. Questions were categorized into four titles: disease feature, surgery operations, before surgery, and after surgery, and titles were subtitled if necessary. Question quantities were described by median and quartile. The socio-psychological factors were compared by Mann-Whitney test; question quantities were compared by Chi-square test.

Results

The participation rate was 99.35% (154/155), totally 1207 questions. The accouting for disease feature, surgery operations, before surgery, and after surgery in 1177 questions raised by adult participants were 8.8% (103/1177), 13.8% (42/1177), 3.6% (163/1177), and 73.8% (869/1177), respectively. Questions patients cared most about were after surgery, such as tips for postoperative activities, while least about before surgery, such as preparation for surgery. Urban citizens cared more about visual recovery; while rural residents about medical expenditure. The difference was shown statistical significance between them (χ2=11.544, P<0.05). Females cared more about housework or caregiving comparing with males, which was shown statistical significance (χ2=12.761, P<0.05).

Conclusions

Patients with macular diseases care different aspects of the surgical management due to individual social-economical statuses and social division of labour. Doctors should be aware of this and offer personalized education and consultation to obtain more satisfactory surgical outcomes.

表1 患者关心手术相关问题的分类、示例及调查结果
大类 亚类 典型问题示例 人数(人次) 问题数目(个)
疾病性质 治疗方法 什么药物可以延缓疾病进展? 24 27
疾病表现 视物变形是黄斑前膜的特有表现吗? 25 26
病因 为什么会得黄斑裂孔? 15 19
预防措施 有何方法可以防止对侧眼得同样的病? 18 18
预后 手术是否能够治愈我的疾病? 13 13
    95(合计) 103(合计)
术前事项 注意事项 术前是否需要全休几天以做准备? 19 23
合并疾病 冠心病患者术前是否可照常服用药物? 14 17
药物使用 手术前需要使用什么药物以做准备吗? 2 2
    35(合计) 42(合计)
手术操作 风险 术后可能失明吗? 45 47
手术过程 手术中眼睛里会填充什么物质? 17 29
术者 谁为我做手术? 23 23
住院手续 我需要住院多长时间? 19 23
费用报销 手术总体花费大约多少? 11 17
成功率 黄斑裂孔的手术闭合率大约多少? 13 13
同病对侧眼 我双眼患有黄斑裂孔,可以同时手术吗? 11 11
    139(合计) 163(合计)
术后事项 长期事宜   421 596
可以读书看报或使用手机或电脑吗?    
活动 手术以后可以打乒乓球吗?    
  可以坐飞机去旅游吗? 128 208
视力恢复 手术能提高多少视力?    
  手术以后多久我的视力能够稳定? 97 120
饮食 手术后可以吃辛辣食物吗? 63 88
复查 术后应该多久复查一次? 54 77
复发 黄斑裂孔手术后还会复发吗? 29 44
用药 有没有对远期视力恢复有帮助的药物? 31 38
其他疾病 手术后可以做核磁共振检查吗? 10 11
工作 手术后多久可以恢复正常工作? 9 10
短期事宜   145 192
  可以做农活吗?    
日常活动 出院后可否坐飞机回家?    
  可以做饭或看孩子吗? 87 113
体位 术后需要保持俯卧位多久? 49 64
用药 如何点眼药? 9 15
    637(合计) 869(合计)
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